What We Do

We are a group of like-minded 501(c)3 non-profit organizations with the goal of leveraging our resources to advance leukodystrophy treament, care, & research


We advocate for newborn screening legislation for all leukodystrophies


We are commited to raising awarness of the leukodystrophies


We aim to educate doctors & patients about leukodystrophy diagnosis, care, and treatment


We strive to provide useful information to leukodystrophy patients and their families

News & Events

Check out the latest news and events going on in the leukodystrophy world

Latest From Blog

Hello world!

Posted By Admin

Welcome to WordPress. This is your first post. Edit or delete it, then start writing!

Nov 2,2015one comments