About the World Leukodystrophy Alliance

We are a group of like-minded non-profit organizations with the goal of leveraging our resources to improve the quality of life of those effected by leukodystrophies by raising awareness and advancing treatment, care, & research.


We advocate for newborn screening legislation for all leukodystrophies


We are committed to raising awareness of the leukodystrophies


We strive to provide useful information to leukodystrophy patients and their families

The Neurobiology of Diseases in Children (NDC) Conference is an annual symposium organized by the Child Neurology Society as part of its annual meeting. For nearly two decades, the NDC has been a forum focused on spreading the most up-to-date information on the clinical aspects, pathogenesis, therapeutic targets, etc. for a given neurological disorder affecting children. The NDC conference attracts roughly 400 – 500 child neurologists and other professionals from all over the United States and beyond. 

This year, on October 4th, 2017, the NDC conference agenda is dedicated entirely to the leukodystrophies.  The World Leukodystrophy Alliance and the Leukodystrophy Care Network are co-sponsoring the “Young Investigators Program” which assists neurologists with expenses associated with traveling to the conference. The conference and annual meeting will be held at the Sheraton Crown Center in Kansas City, MO from October 4th to October 7th, 2017. Learn more…