What We Do

We are a group of like-minded 501(c)3 non-profit organizations with the goal of leveraging our resources to advance leukodystrophy treament, care, & research

Advocacy

We advocate for newborn screening legislation for all leukodystrophies

Awareness

We are commited to raising awarness of the leukodystrophies

Education

We aim to educate doctors & patients about leukodystrophy diagnosis, care, and treatment

Support

We strive to provide useful information to leukodystrophy patients and their families

News & Events

Check out the latest news and events going on in the leukodystrophy world

Latest From Blog

Hello world!

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Nov 2,2015one comments