We are a group of like-minded 501(c)3 non-profit organizations with the goal of leveraging our resources to advance leukodystrophy treament, care, & research
We advocate for newborn screening legislation for all leukodystrophies
We are commited to raising awarness of the leukodystrophies
We aim to educate doctors & patients about leukodystrophy diagnosis, care, and treatment
We strive to provide useful information to leukodystrophy patients and their families
Check out the latest news and events going on in the leukodystrophy world
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