About Us

The Myelin Project was established in 1989 by Augusto and Michaela Odone for their son Lorenzo who suffered from adrenoleukodystrophy (ALD), a rare genetic disease that deteriorates myelin in the brain and central nervous system. Although not medical doctors, the Odones developed a treatment and named it Lorenzo’s Oil which is now an adopted treatment throughout the world.

Contact Info

The Myelin Project
representative: Greg Benton, Patti Chapman
phone: 1-800-869-3546