The World Leukodystrophy Alliance (“Alliance”) is an alliance of like-minded organizations interested in the development of therapies and improving the quality of life for those with leukodystrophies.


One day there will be a timely diagnosis and an accessible, effective therapy for everyone with a leukodystrophy.


The World Leukodystrophy Alliance exists to leverage the strengths, resources, and efforts of an alliance of leukodystrophy support organizations. Together the alliance will work to improve the quality of life for those living with a leukodystrophy, while accelerating the development of and improving access to viable therapies.