Visit the Hunter’s Hope Foundation website
Hunter’s Hope was established in 1997 by Jim Kelly and his wife Jill, after their infant son, Hunter (2/14/97—8/5/05) was diagnosed with Krabbe Leukodystrophy, an inherited fatal nervous system disease.
While Jim and Jill have been blessed with the opportunity to share Hunter’s story and the hope of the Foundation named after their son all over the world – their greatest passion is to bring encouragement and hope to families in the midst of suffering.
Hunter’s Hope Foundation was established to address the acute need for information and research with respect to Krabbe Disease and related Leukodystrophies. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of these fatal illnesses.
Accordingly, our mission is four-fold:
- To broaden public awareness of Krabbe Disease and other Leukodystrophies thus increasing the probability of early detection and treatment.
- To gather and provide current, functional information and service linkages to families of children with Leukodystrophies.
- To fund research efforts that will identify new treatments, therapies and ultimately, a cure for Krabbe Disease and other Leukodystrophies.
- To establish an alliance of hope that will nourish, affirm and confront the urgent need for medical, financial and emotional support of family members and those afflicted with Leukodystrophies.
Among the essential goals, founders Jim and Jill Kelly, seek to inspire an appreciation of all children and express a thankful heart towards God for these precious gifts of life. These bedrock values are categorically and vigilantly expressed throughout all of the Foundation’s programs and activities.